A ONE-YEAR-OLD child suffering from Niemann-Pick disease is in dire need of RM400,000 for surgery but his parents have been unable to reach the mark after a month of crowdfunding.
K. Muthukumara’s family have been actively seeking help from the public through newspapers and social media sites, and thus far, they have only collected RM58,000.
The surgery needs to be done before he turns 18 months and the family was hoping to do it in early July.
His father, a branch manager at a security firm, A. Kulandai, is fighting to save his son after losing his elder boy to the same disease.
He said they had sought treatment after Muthukumara showed symptoms similar to his elder son, who died in August 2016 at the age of five because of the disease and dengue haemorrhagic fever.
Infants with Niemann-Pick usually develop an enlarged liver and spleen by three months of age.
They cannot gain weight or grow at the expected rate, and go through progressive loss of mental ability and movement.
After much research, Kulandai found the Mazumdar Shaw Medical Centre in Bangalore, Karnataka, India, which gave his child a 95% chance of survival.
“They estimated the cost of treatment at RM400,000 and we have to stay there for at least three months for his recovery,” he said.
Kulandai sought the assistance of Selangor executive councillor Ganabatirau Veraman through the Malaysian Indian Voice (MIV) members, V. Pappa Raidu and P. Yugarajah, both councillors in Selangor.
Ganabatirau said he was sad to see Malaysians having to seek medical treatment overseas despite having hospitals in the country.
“I hope the Government can invest in treatments here so medical assistance can become affordable for all Malaysians. And I hope people can donate to this family,” he added.
The family said they would stop the donation drive once it reaches RM400,000.
MIV donated RM1,000 while Ganabatirau donated RM1,000 in his personal capacity. This is the second time Ganabatirau has donated.
To donate, call Kulandai at 012-267 5954 or his wife, Tamil Selvi, at 016-279 9659.
Meanwhile, Kulandai’s friends have arranged to hold a charity dinner on June 29. For details, call Rajesh at 016-305 3567.