Why more adults in Malaysia are seeking autism diagnosis

An autism diagnosis can bring clarity, self-acceptance and access to the right support. Photo: 123rf

For many adults, discovering that they are autistic later in life can be a life-changing moment – one of self-acceptance and empowerment.

Consultant clinical psychologist Prakash Ravindran says that a diagnosis isn’t about finding something wrong – it is about understanding yourself better.

“A diagnosis should not be a rushed decision. It offers self-awareness and clarity. Individuals who are diagnosed with autism can also connect with others who have been on a similar journey, read personal accounts, listen to autistic voices and take time to reflect,” explains Prakash in an email interview from Kuala Lumpur.

Autism spectrum disorder (ASD) is a lifelong neurodevelopmental condition that affects the brain.

One of the key benefits of a diagnosis is the opportunity to engage with support networks and communities that share similar experiences, Prakash, 36, shares.

Prakash (left) says society should embrace a strengths-based understanding of neurodiversity. Photo: Prakash Ravindran

“Many find comfort in connecting with peer groups, which can be validating and empowering.”

In the last decade, Prakash has worked with over 10 adults with autism, many of whom have found a late diagnosis to be a deeply affirming experience.

“For some, it helps explain lifelong challenges or differences. It allows them to better understand and accept who they are, and more importantly, to advocate for themselves.”

He acknowledges that misconceptions and stigma still persist.

“Autism isn’t a bad thing – it is simply a different way of experiencing the world.

“Instead of focusing on deficits, we should embrace a strengths-based understanding of neurodiversity,” he says.

Prakash believes that shifting public perception is key to creating a more inclusive society.

“We need to educate people on what autism is (and isn’t), amplify autistic voices, and highlight their diverse talents and abilities. Just like Malaysia’s cultural diversity enriches our society, embracing neurodiversity brings invaluable perspectives and fosters more compassionate communities.”

He also addresses common myths about autism, including the misconception that it only affects children.

“Children with autism grow into autistic adults, yet many people fail to recognise this. Another misconception is that all autistic individuals are the same, when in reality, autism is a spectrum with a wide range of traits and experiences.

“Some believe autistic individuals lack empathy, but many experience deep empathy – they just express it differently.

“There is also a misunderstanding that only those with visible struggles can be autistic, when in fact, many successful and verbal individuals are also on the spectrum. Many autistic adults lead full, meaningful lives, often masking their daily internal struggles.”

Boyle has shared about how her autism diagnosis brought her clarity and self-understanding. Photo: AFP

According to health website www.healthcentral.com, British singer Susan Boyle was diagnosed with Asperger’s syndrome – part of ASD – as an adult. The singer, who rose to fame on Britain’s Got Talent, has spoken about how the diagnosis brought her clarity and self-understanding.

Prakash emphasises the importance of strong support systems, whether from family, friends or the workplace.

“Social, emotional and workplace support is crucial. This includes joining peer support groups, connecting with others who share similar experiences, and having family and friends who respect boundaries and understand sensory needs.

“Seeking guidance from a mental health professional well-versed in autism can also help with emotional regulation, anxiety and trauma,” says Prakash.

He adds that the trend of adult autism diagnosis is on the rise with more Malaysian adults interested in getting assessed over the past four years.

Bridging the gap

While autism awareness is growing, securing meaningful employment remains an uphill battle for many adults with autism, says National Autism Society of Malaysia (Nasom) chairman Julian Wong, 45.

“Many individuals with autism remain unemployed or underemployed despite possessing valuable skills.

“Misconceptions, limited job opportunities, a lack of workplace accommodations, social communication challenges, inadequate support systems and stigma create significant barriers.”

Wong emphasises the need for inclusive employment opportunities for individuals with autism. Photo: Julian WongWong stresses the importance of creating inclusive job opportunities for individuals with autism.

“Companies can implement awareness programmes, offer job coaching support, adapt flexible work environments, and collaborate with non-

governmental organisations.

“Government incentives and corporate social responsibility (CSR) initiatives can further encourage businesses to embrace neurodiversity,

fostering autism-friendly workplaces that benefit both employers and employees.”

Beyond employment, Wong highlights the lack of structured support for autistic individuals after they leave school. While some NGOs such as Nasom provide vocational training and life skills programmes, job opportunities remain scarce, he adds.

“Families often struggle due to the absence of structured guidance for long-term care. Greater investment in adult autism services, including job placement, independent living programmes, and lifelong learning, are essential to ensure meaningful support beyond school years.”

Another pressing concern for families is financial and long-term planning. Many parents worry about their autistic child’s future care and seek options to ensure their security.

“Estate planning allows parents to set up trusts or appoint legal guardians for lifelong security. Government assistance provides some support through programmes like Bantuan OKU.

“However, medical insurance coverage remains a major challenge, as most insurers exclude autism as a pre-existing condition.

“Even high-premium plans often fail to cover essential therapies such as behavioural, speech and occupational therapy, leaving many families struggling to afford necessary care.”

Addressing these challenges requires policy changes and greater public awareness, Wong shares.

“Malaysia needs a national autism policy with better job incentives, vocational training, autism-trained healthcare, insurance coverage, assisted-living support, lifelong financial aid, and stronger anti-

discrimination laws.

“Ensuring equal opportunities and long-term, structured support for autistic individuals beyond childhood should be a national priority,” he emphasises.