Treatment for a disease so rare, it has no name

The zebra print ribbon is the symbol for rare diseases, which are defined as conditions that affect less than one in 4,000 people in Malaysia. — Wikimedia Commons

There may never be a name for nine-year-old Ireland Tolbert’s diagnosis, but one day soon, n-Lorem, an American medical research and development non-profit, hopes to provide a medication that will improve her quality of life.

Shanna Tolbert always wanted to be a mother.