Lee shakes hands with Ardi, as Ardi's parents Zabidi and Maisarah look on. Prior to his treatment, Ardi was too weak to even shake hands. — S.S.KANESAN/The Star Ardi Izzuddin Zabidi, 16, has an ultra-rare disease that only strikes less than one in 250,000 babies.His condition is so rare that he is the only person in Malaysia known to have it. Already a subscriber? Log in. Start your ads-free experience now Monthly Plan RM13.90/month Subscribe Annual Plan RM12.33/month Billed as RM103.60/year Subscribe 1 month Free Trial For new subscribers only Subscribe Cancel anytime. No ads. Auto-renewal. Unlimited access to the web and app. Personalised features. Members rewards. Related stories:Parents are pillars of strength for these rare disease patientsRare diseases in Malaysia need more attention and supportOne couple's fight to get treatment for their son with SMATreatments for SMA are available, but unaffordable for most MalaysiansTreatment is not a cure for patients with SMA Subscribe now to our Premium Plan for an ad-free and unlimited reading experience! Tags / Keywords: Rare Diseases , Lysosomal storage disorders , Mucopolysaccharidosis (MPS) , Hydrocephalus Found a mistake in this article? Report it to us. What is the issue about? Spelling and grammatical error Factually incorrect Story is irrelevant This field is mandatory This field is mandatory Email (optional) Please enter valid email. Report issue Report issue Cancel Invalid captcha response. Please re-try again. Thank you for your report!