Scaling Mount Kinabalu to raise awareness about rare diseases

Sivasangaran with the Journey for the Rare banner on the summit of Mount Kinabalu.

KOTA KINABALU: A father’s love for his ill baby has pushed him to get out of his comfort zone as he strives to create awareness on rare diseases in Malaysia.

Sivasangaran Kumaran, 39, whose 16-month old daughter, Swathi Nisha Nair, suffers from a rare disease called Infantile Pompe, decided to scale this region’s highest mountain – Mount Kinabalu, to bring the message of hope and create awareness.