Needs of people with Down syndrome are changing

DOWN syndrome, also known as trisomy 21, is a genetic disorder where a person is born with an extra copy of chromosome 21.

Typically, a baby is born with 46 chromosomes. Babies with Down syndrome have an extra copy of one of these chromosomes, chromosome 21.

In fact, the uniqueness of the 21st chromosome is embedded in the date chosen for World Down Syndrome Day (WDSD), which is March 21 (21st day of the third month). WDSD has been observed globally by the United Nations since 2012 to advocate for the rights, inclusion and well-being of people with Down syndrome.

In Malaysia, the observance is prompted by the ongoing challenges faced by these individuals in accessing government assistance. The needs of individuals with Down syndrome are changing as their life expectancy rises due to improvements in healthcare and early intervention programme (EIP).

We urge the government to provide education and employment opportunities that will not only enhance their quality of life but will also nurture a sense of belonging and self-esteem in them.

Let’s advocate for fair opportunities and inclusion for individuals with Down syndrome, working towards a society where everyone, regardless of their genetic makeup, can thrive.

ELLY SHAHIRA MAT SIDIK

Malaysian Node of the Human Variome Project (MyHVP)

NOR RAFIDA MOHD SENI

School of Languages, Literacies & Translations

and PROF ZILFALIL ALWI

Head, Malaysian Node of the Human Variome Project Universiti Sains Malaysia

Kubang Kerian, Kelantan