Urgent need to establish national rare disease policy, says Ras Adiba

KUALA LUMPUR: There is an urgent need to establish a National Rare Disease Policy to ensure that information, diagnosis and treatment of those with rare diseases are more strategic and being developed with patients as its guide, said Senator Datuk Ras Adiba Radzi (pic).

In conjunction with Rare Disease Day observed today, Ras Adiba in a statement said this is critical as the number of medications available for rare diseases is on the rise and increasing number of patient groups will advocate for access to these new drugs and treatments.