This heart transplant recipient isn't shy in talking about it


By AGENCY

Brewer tends to one of her ‘chickie babies’ in her backyard. Her chickens often accompany her to class as ‘teaching assistants’. — TNS

Shaunté Brewer didn’t know that her health was in danger at age 13.

As the Chicago, Illinois, United States, resident recalls, she was more focused on passing her softball test in gym than on her prevalent cough.

Fortunately, Brewer’s mother determined that the sound and persistence of her daughter’s cough called for a trip to the hospital.

“The way she described the cough was a mix of a smoker’s cough.

“Imagine a 13-year-old girl with a super deep cough,” said Brewer, now 36.

“I just knew my mother was waking me up for nothing at all.

“As soon as we went into the emergency room, I knew triage was going to look at everything and say you can go home with a cold.”

But when she was shown her X-ray, her heart was on both sides of her chest.

Brewer said her heart was swollen to the point where it was struggling to beat.

“Thank God for my mother,” Brewer said.

“I never made that softball test.”

She remembers how her mouth-breathing while running led physicians to the root of the problem.

She had myocarditis – inflammation of the heart muscle.

Weakening heart

Brewer’s cardiologist and Chicago’s Advocate Christ Medical Center advanced heart failure and heart transplantation medical director Dr William Cotts said her condition was caused by a virus.

Her body likely attacked her heart when it was attacking the virus.

“Oftentimes, it’s self-limited, it gets better, people’s hearts get back to normal, they’re fine,” he said.

“And in some patients, their hearts worsen over time.”

Brewer was put on medication and maintained her health, living her life to the best of her ability – travelling, becoming an educator and signing up to be an organ donor at age 19, not knowing that she was going to be on the other side of the process one day.

When coming back from a trip to South Africa with a layover in Amsterdam, the Netherlands, Brewer contracted Covid-19.

And while she and her heart made it through that, Brewer said she felt different afterward.

She didn’t have the energy to do anything from that point on.

She lost a lot of weight and couldn’t keep food down.

Again, she went to the hospital, thinking it was a stomach bug.

“Lo and behold, I found out that was my heart saying, ‘I fought the good fight, and it’s time to retire,’” Brewer said.

She went back to Advocate Christ Medical Center, and less than a week later, on Feb 12, 2023, she had a new heart.

She remained in the hospital for six weeks.

Sharing by educating

Brewer celebrated the first anniversary of her heart transplant last month (February 2024), which is American Heart Month, with a trip to Wisconsin Dells and celebrations with friends and family.

She was used to living with decreased heart function for the majority of her life, and had come to terms with the fact that she may not make it to her 80s or 90s, like her family members.

“Now that I have the transplant, I feel like I’m going to be here until I’m 90.

“I can be here with the rest of my family,” she said.

Brewer is all about sharing her experience as a transplant recipient with the world, including her elementary (primary school) students.

As founder and executive director of Vision Outreach – an initiative that brings her into classrooms to teach STEAM (science, technology, engineering, art and math), urban agriculture and social-emotional learning – she’s been discussing the science behind her health condition since she founded the organization in 2012.

She currently teaches elementary school kids at Cambridge Classical Academy in Chicago.

Brewer said she’s taken calf hearts and lungs from butchers to school so that students can perform fake surgeries.

When they ask about her surgery scar or see her using a cane, Brewer turns the questions into teachable moments on science, biology and healthy lifestyles.

She aims to impart knowledge, as well as wisdom, which will in turn branch out and change the outlook of Black communities to make people healthier and happier.

“I talk to them about their diet and nutrition,” she said.

“I already was a very tech-savvy person.

“Now I’ve included science as it pertains to health, as well as space.

“The students that have seen me in the past two years saw me coming into the school with a PICC (peripherally inserted central catheter) line.

“So they literally saw the progression of my health, and I told them to remember: Did you guys ever hear me speak anything but positivity about my particular situation?

“I always keep a positive mindset.”

A farmer too

Dr Cotts said that mindset has gotten Brewer to where she is now.

When the Covid-19 pandemic started, she focused her attention to urban farming – growing sunflowers, tomatoes, over a dozen of the world’s hottest peppers, kale, spinach, collard greens, cabbage and lettuce.

This year (2024), Brewer is going heavy on the leafy greens.

“I pretty much can’t eat a salad unless I grow the stuff myself,” she said.

“I don’t use any pesticides. I’m a 100% organic farmer.”

She is also a proud mama of nine chickens that live on her farm.

She has her own channel with a number of “how to grow” videos on TikTok and YouTube under the moniker ChiFarmerBae.

She holds virtual field trips for students, showing them how she grows everything and introduces them to her “chickie babies”.

She’s known to take her chickie babies into schools too, with them resting on her shoulder or sitting on her desk acting as a teaching assistant.

“If the class gets loud, the roosters tend to crow to settle the class down,” she said.

Just last week, one of her chickie babies laid an egg during her class with second and third graders.

Brewer even has a chicken named Transplant, because when he came out of his shell, he had a little line of white feathers down the front of his chest.

‘Live life fully’

In the next five years, the Illinois State University alumna envisions growing her farm, growing more community gardens, growing youth in a holistic way, and growing her own child – hopefully a boy.

“Let’s face it, I don’t look like a typical heart transplant patient,” she said.

“Usually when you hear of a heart transplant, it’s somebody that’s past childbearing years.

“The medication, the main focus is obviously to keep you alive because your immune system is at bay, not support pregnancy.

“Dr Cotts has known me for years. ... After the transplant, maybe two weeks later, I said, ‘I’m going to have a baby.’

“Dr Cotts said, ‘Y’all don’t know Shaunté. If she said she’s going to do it, she’s going to do it.’

“Tomorrow is not promised. ... If there was one thing I want people to take away from my story, it’s to live life fully and to always be considerate in your journey.”

Although Brewer will be on medications for the rest of her life, Dr Cotts said her risk for rejection of the heart transplant and infection can often decrease over time.

The first year is where the most adverse events can happen and when the need to watch people most carefully arises, he said.

With risk factors that include hypertension (high blood pressure), diabetes, obesity, history of valve abnormalities, congenital heart disease and coronary disease, Dr Cotts said there are many things that medical professionals can do to prevent heart failure and address the risk factors.

“Everyone should visit their physician regularly, and if they have any of these risk factors, they should make sure that those are being addressed,” he said.

“Another thing to keep track of is symptoms; if someone has shortness of breath, decreased ability to exercise, increasing fatigue or not sleeping well – some of those things can point to the presence of heart failure.

“The presence of chest pain or tightness is a very important symptom.

“It starts with knowing what risk factors you have and what diseases you may have that may lead to heart failure, and addressing those as soon as possible with your health care provider.” – By Darcel Rockett/Chicago Tribune/Tribune News Service

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Heart failure , heart transplant

   

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