Their son's condition is incurable, so these parents channel resources to help

Doug (top left), his wife Kasey, daughter Lauren and son Will (bottom left), Nick (top centre), his wife Lauren, and daughter Delta (bottom centre), Kiran (top right), his wife Anju, his daughters Aadya Warrier and Krishna (bottom right) pose for a portrait in Irving, Texas. — Photos: SHAFKAT ANOWAR/The Dallas Morning News/TNS

WHEN Will Woleben was a baby, he followed his mom around their McKinney, Texas, home while she cleaned, waving a toy vacuum. As his second birthday approached, he started throwing up the Goldfish and blueberries he used to gobble down. When he tripped and fell, he told his mom he couldn’t get up.

Countless doctors’ appointments led to an MRI brain scan and a diagnosis. Will’s brain cells were dying because of a disease called Leigh syndrome.