A family's journey caring for three daughters with genetic fatal disease

Ali has cut down on trucking jobs to be available at home to care for his daughters.. Photo: Phinehas Adams/unsplash

On a warm afternoon in late March 2020, Ali Abdi and one of his young daughters, Maryam, sat outside their rental home observing the neighbourhood along a St. Peter street in Minnesota they'd moved to only days earlier.

He hoped fresh air and sunshine would help relieve the fatigue that had built up after long hours of helping care for his three girls, all who have been diagnosed with a fatal form of the genetic disease leukodystrophy.