Crowdfunding in Singapore raises RM10.11 million needed to buy drug to treat baby with rare genetic disorder

Baby Zayn was diagnosed with Type 1 spinal muscular atrophy about five weeks after he was born. - PHOTO: SYAHIRAH YAKUB

SINGAPORE, Nov 12 (The Straits Times/ANN): A five-month-old boy facing immobility or even death because of a rare genetic disorder may get a new lease on life after his parents successfully raised the S$3 million (RM10.11 million) needed to treat his condition.

Baby Zayn – who was diagnosed with Type 1 spinal muscular atrophy (SMA) about five weeks after he was born – will be able to get the drug Zolgensma by early December, his parents, Mr Nabeel Salim Abdat and Ms Syahirah Yakub, told The Sunday Times.