I could barely pronounce it, let alone understand what it did to the bodies of those living with NF. As it was, I understood at the time that it is an incurable genetic condition which causes non-cancerous tumours to grow anywhere in the brain, along the spinal cord and central nervous system.
What does Works of Gratitude aim to do? Well, in Foong's words, it aims to address the main challenges faced by Malaysian NFers - those living with NF1, NF2 and Schwannamatosis.
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