LIKE most boys his age, nine-year-old Adryon Koh couldn’t sit still. By the time we settled for lunch 20 minutes after arriving at the Novotel Bogor Golf Resort and Convention Center in Bogor, Indonesia, he was back from his exploration of the hotel grounds with a rundown of its facilities.
His mother, Chew Kim Yin (42), reported his findings as he rushed off again to look for the spa in the building. “He’s excited about the pool on the other side of the hotel, but he didn’t like the road leading to it because it’s full of rocks.”
Adryon is afraid of falling down. As he has haemophilia, a group of bleeding disorders that makes it difficult for his blood to clot, even a simple fall can cause him to bruise and bleed quite badly. The rocky road made it difficult to keep his balance.
Seated quietly beside his mother Norhaliza Hussain (48), 12-year-old Mohammad Hazim Qayyun realises the risks too. Like Adryon and many of the members of his family, Hazim also has haemophilia.
“He doesn’t have any problems avoiding vigorous activities because many of us in the family have haemophilia. So he doesn’t feel like he is missing out,” says Norhaliza.
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