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Patients living with rare disorders face daily struggles, and we salute the families who are committed to caring for them, in conjunction with Rare Disease Day on Feb 29.
Studies have found that there may be an unconscious bias against women that is getting in their way of being diagnosed and treated properly.
PETALING JAYA: There is a need to have a national policy on rare diseases in Malaysia, according to one of the recommendations in the White Paper on Rare Disease Policy in Malaysia, which was launched by the Institute for Democracy and Economic Affairs (Ideas) on Friday (Dec 20).
UNITED NATIONS (Reuters) - The U.S. Ambassador to the United Nations made a rare compassionate public gesture towards her Iranian counterpart in the Security Council chamber on Thursday, expressing condolences over the death of an Iranian toddler.
From EDMUND LIM, Persatuan WeCareJourney founder and father of child with SMA.
ZURICH: Novartis AG is buying US biotechnology company The Medicines Co for about US$9.7bil, the Swiss drugmaker said, as it seeks to expand its portfolio of medicines against cardiovascular disease.
TOKYO (Reuters): Japanese actress Erika Sawajiri, famous for her role in 2005 drama 1 Litre Of Tears, has been arrested on suspicion of possessing drugs, NHK reported on Saturday (Nov 16) citing unnamed sources.
This inheritable condition causes a person’s muscles to grow increasingly weaker right from the womb, and can result in early death.
SEREMBAN: Time is running out for 18-month-old Abinash Sai who is in dire need of a liver transplant.
A mom and her teenaged son, who has a rare genetic defect affecting his nervous system, are determined to not only battle the disease, but also raise awareness for others like them.