SUNGAI SIPUT: Bedridden eight-month-old Nur Umairah Jannah Abdul Muhaimin is in dire need of help.
Born with hydrocephalus in October last year, she is under the care of her aunt Nurul Shafikah Zainuddin, who is a factory operator.
Hydrocephalus is a condition in which excess cerebrospinal fluid builds up within the ventricles (fluid-containing cavities) of the brain and may increase pressure within the head.
“We have consulted at least three specialists and they told us that nothing can be done due to her age. But we still need to go to the hospital for medical check-ups.
“A few days ago, there was a suggestion to bring her to a specialist in Hospital Kuala Lumpur (HKL) who may be able to help her,” Nurul Shafikah said in an interview at her home in Taman Kledang here.
Photos of Nur Umairah went viral after her neighbour uploaded it on social media.
Nurul Shafikah, 19, said despite the illness, her niece is “active and friendly”.
“We often receive visits from our neighbours and friends. She would laugh and make happy noises when she sees visitors.
“I want to see her happy and grow up like other children her age,” she said, adding that it would cost them RM800 a month for diapers and milk.
Presently, Nur Umairah is staying with Nurul Shafikah’s family.
Nurul Shafikah said although they were eager to bring her to HKL as soon as possible, they needed to prepare her medical records first.
“Since we do not have a car, we have to take a taxi from our house to Raja Permaisuri Bainun Hospital in Ipoh. It would cost us at least RM150.
“We can only get the documents ready next month because her medical appointment is scheduled on July 23,” she said.
Nurul Shafikah said neighbour Mastura Meor Razali was kind enough to help look after her when no one was available.
“When I am working, I cannot use my phone. So when people want to visit us, they will contact Mastura instead.
“During one occasion, a visitor came to our house but she was not in a good mood. She cried loudly and wailed until the guest left,” she said.
Mastura, 41, said she wished more aid could be channelled to Nur Umairah.
“It breaks my heart seeing her condition,” she said.
Those who wish to pay a visit to the baby can contact Mastura at 011-3950 2866.