SIBU: Thanks to public donations, a two-year-old boy suffering from KID (Keratitis-ichthyosis-deafness) syndrome can now seek medical treatment.
Vincent Siaw, through his father Siaw Xian Wen, had appealed to the public for donations on Feb 1 as the family needed a total of RM105,000 for his medical expenses.
Within just a week, Malaysians came through for the boy.
KID syndrome is characterised by eye problems, skin abnormalities and hearing loss.
People with KID syndrome usually have keratitis, which is inflammation of the front surface of the eye (the cornea). The keratitis may cause pain, increased sensitivity to light (photophobia), abnormal blood vessel growth over the cornea (neovascularisation), and scarring.
Siaw, 27, an interior designer, who spoke at a press conference which was arranged by Lanang MP Alice Lau recently, said RM85,000 was needed for two cochlear implants for Vincent to hear normally, and RM20,000 for surgery on his skin.
Vincent was born a normal child, but when he was six months old, he was diagnosed with congenital KID syndrome.
His skin started to become dry and his parents had to apply lotion on it. As he had hearing difficulties, doctors recommended that he undergo cochlear implants to restore his hearing.
Meanwhile, Lau told The Star on Wednesday (Feb 13) that they had received RM108,500 which was enough to meet the boy's medical expenses.
“We want to thank all those who had donated their money which has enabled the boy to proceed with the cochlear implants and surgery for his skin problem,” she said.
Lau added that she had also helped the parents apply for the OKU (people with disability) card, which would allow the boy to have cochlear implant at a government hospital but on one ear only.
“His parents chose a private hospital on the advice of doctors as the cochlear implants can be done on both ears,” she said.
Lau said the parents had visited a doctor in Kuching to fix the operation date for sometime in March.
Did you find this article insightful?