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Parents of child with Spinal Muscular Atrophy appeal for increased support for rare disease treatment in Budget 2019


  • Nation
  • Tuesday, 23 Oct 2018

PETALING JAYA: Parents of a child with Spinal Muscular Atrophy (SMA) have urged the Federal Government to expand treatment for rare diseases in  Budget 2019.

Edmund Lim and Yap Sook Yee, whose son Branden who has SMA Type 2, called on the government to show fairness and equality by funding the drugs which allow children with SMA to get life-saving and life-changing medicines like Spinraza. 

   

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