Registry of rare disorders needed, says don

  • Nation Premium
  • Friday, 10 Jun 2011

PETALING JAYA: About 20,000 or 3% of all babies born in Malaysia every year have some form of disability, including rare disorders, but there is no data bank with details about their condition.

To better address the problems faced by such babies, the Health Ministry should set up a central registry with details about patients with rare disorders and ensure that the details were kept strictly confidential, said medical geneticist Prof Dr Thong Meow Keong.

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