KUALA LUMPUR: Housewife Selamah Uda lost three children to neuro-degenerative disorder and her youngest child is also suffering from the same disease.
Nor Bainati Jannati Mustapa, five, has suffered epileptic attacks for the past two years and is dependent on her parents to move around and for daily care.
Selamah, 47, said her daughter's condition had worsened and she would cry for at least two hours during the attacks.
She has to be fed with food which must be cut into tiny pieces and drinks water that must be dripped into her mouth, she said yesterday.
Apart from Nor Bainati, Selamah has two other children who do not have the disorder.
But another five of her children had died.
Her eldest son Mohd Suhaimi died of neuro-degenerative disorder when he was four years old in 1983. Her fourth child Saidatul Musliha also died when she was nine in 1994, while her fifth child Saidatul Zaharah died when she was 12 in 1998.
Saidatul Suhaila died in 1989 of leukaemia at the age of seven, while Saidatul Nor Fatihah died in 1995 due to heart failure when she was two weeks old.
Nor Bainati's father, Mustapa Bidin, 51, works as a Felda settler in Pahang, and earns only RM500 per month.
Selamah's tragic story will be told in a documentary drama series themed Kisah Hidupku (My Life Story) produced by Produksi Seni 2020, which would be aired over RTM1 at 7pm beginning May 4.
Along with her, 12 other individuals and families would be featured in the series, depicting their ill-fated lives due to various chronic illnesses.
Produksi Seni 2020's executive directors Nancie Foo and Wendy Wong said the series was meant to create awareness of the lives of unfortunate people in the country.
The series was given a soft launch by Datin Seri Rosmah Mansor, wife of Deputy Prime Minister Datuk Seri Najib Tun Razak.
In her speech, Rosmah called on neighbours to be kind to their unfortunate friends and help out when necessary.
Just because somebody is suffering, we should not turn our backs on them, she said.
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