SIBU: The parents of a two-year-old boy, Vincent Siaw, who is suffering from Keratitis-ichthyosis-deafness ( KID) syndrome are appealing for public donations urgently as they need a total of RM105,000 for his medical expenses.
KID syndrome is characterised by eye problems, skin abnormalities, and hearing loss.
People with KID syndrome usually have keratitis, which is inflammation of the front surface of the eye (the cornea).
The keratitis may cause pain, increased sensitivity to light (photophobia), abnormal blood vessel growth over the cornea (neovascularisation), and scarring.
The boy’s father, Siaw Xian Wen, in a press conference organised by Lanang MP Alice Lau, said RM85,000 was needed for two cochlear implants for him to hear normally, and RM20,000 for surgery for his skin problem.
All this will be done at the Sarawak General Hospital.
“We have managed to raise RM10,000 which is not enough.
“We appeal for public donations to treat him,” said Siaw, 27, who works as an interior designer.
He said Vincent was born normal but when he was six months’ old, he was diagnosed with the congenital syndrome.
“His skin started to become dry and had hearing difficulty.
“Doctors recommended cochlear implants to restore his hearing,” he said.
For more details, call 016-370 6000.