Adam and Arman suffer from a fatal disease. Here's how you can help

For Rubee and Sharin, every day they get to be with their sons is a blessing. Photos: AZMAN GHANI / The Star

Rubee Ahmad and Sharin Abdul Rahman are always preoccupied with their two sons, as all parents are. But their burden is much heavier than most as their worries have to do with keeping their sons alive, literally.

Their sons, Ahmad Adam and Muhammad Arman, have Hunter Syndrome or Mucopolysaccharidosis (MPS) Type 2, a rare genetic disorder affecting one in about 150,000 children in Malaysia.