Two Malaysians defy limits to leave a legacy of creativity and courage

Thong Kai (centre, pictured with Singaporean singer-songwriter JJ Lin and brother Jun Tat) believed in living life to the fullest. Photo: Tan Thong Kai

Disability is never the end of possibilities. With support, understanding and love, every individual can live a full, purposeful life and inspire those around them.

No one lived that truth more fully than two extraordinary Malaysians who defied their respective physical and neurological limitations to build extraordinary lives.

Although tech entrepreneur Tan Thong Kai and artist Janet Lee have passed on, their stories continue to demonstrate how love and support can empower even the most vulnerable among us to live not just ordinary lives, but impactful ones.

 

Unbreakable spirit

 

Despite his physical disability, Thong Kai was active and independent. He wasn’t defined by his condition and just wanted to live a normal, full life. Photo: Tan Thong KaiThong Kai was born with osteogenesis imperfecta, or brittle bone disease.

As a result, he wasn’t able to walk and required a wheelchair to move around. When he was six days old, he had already suffered his first fracture during a bath.

Growing up, his bones fractured easily, often healing poorly, leaving him with misaligned limbs. Yet, none of that stopped him from living his life to the fullest.

He studied computer science, started his own business, travelled alone across continents and became a respected figure in Malaysia’s e-sports community.

Despite enduring pain, multiple surgeries and stares from strangers, Tan responded to life with humour, tenacity and unshakeable positivity.

“If a kid asked why he looked different, he’d joke, ‘I didn’t listen to my parents’ advice to eat my vegetables, so make sure you do!’” reveals his sister Tan Li Lynn. “Ah Kai turned awkward moments into laughter.”

“He made his difficult life seemed easy,” his brother Tan Jun Tat, adds. “He always used to say ‘Aspire to inspire’, and he’s definitely an inspiration to all of us.”

Tan is survived by his younger siblings: sisters Tan Lay Hui, 36, and Li Lynn, 32, and twin brothers, Jun Liang and Jun Tat, both 28, and his father Datuk CS Tan, 69, a widower.

 

Colour my world

 

Janet was an artist who expressed herself through colours. Photo: The Star/Samuel Ong

Janet’s journey was different but no less remarkable.

Born a healthy baby, she began having seizures at 18 months and was later diagnosed with intractable epilepsy – which meant her condition couldn’t be treated with medication.

She often collapsed without warning, suffering bruises and injuries.

By the age of 16, Janet still couldn’t read or write.

“No one could explain why,” says her mother, Joyce Moi, 69. “There was nothing wrong with her brain nor her eyes.”

It wasn’t until a specialist in Australia suggested that the issue could be a neurological disconnect between her brain and vision that the pieces finally came together.

“An educational consultant in Melbourne said Janet’s reading and writing issues could be hindered because of her vision. While her eyes and brain were fine, the connection between them wasn’t,” reveals Moi.

Faced with two choices – to help her daughter live within her limitations or push her to discover her fullest potential – Moi chose the latter.

That decision changed everything.

Janet became an artist, expressing herself not through conventional techniques but through colours.

“She was a colourist,” Moi explains. “Her art expressed her feelings, thoughts and moods through vibrant hues and shades.”

Her works found homes in galleries, on fashion and premium items, and even in people’s homes and offices as part of curated collections. Janet began using WhatsApp, YouTube, Facebook and could even order online meals independently.

“That might not seem like much to others,” says Moi. “But for someone who was diagnosed as intellectually and developmentally disabled, she had come incredibly far.”

 

Digital playground

 

Tan surprised everyone by travelling alone to Seattle for The International, an annual Dota 2 competition. He is pictured here with the Malaysian Dota 2 team. Photo: Tan Thong Kai

While Janet’s canvas was colour, Thong Kai’s playground was digital.

In 2003, he discovered Dota 2 – a multiplayer strategy game – and it quickly became his passion. Even though his physical condition made fast reflexes difficult, his strategic mind thrived.

In 2021, Thong Kai joined the Ideal Coaching Global programme in Kuala Lumpur, training to help other players reach their potential.

“He told us it gave him confidence and purpose,” says Jun Tat. “He couldn’t always compete physically, but he could teach – and he was brilliant at it.”

He even travelled alone to gaming tournaments and events in the United States, Norway and Ireland.

“He proved that physical limits didn’t mean life limits,” he says.

Janet, too, found meaning beyond her personal growth.

Inspired by her journey, her family founded the House of Janet Lee, an initiative to mentor mothers of neurodivergent children. The project, encouraged by her father, Lee Tiam, 70, spearheaded by her mother, and named by her sister Joanne Lee, 42, aims to equip families with the tools and knowledge to help their children reach their potential.

“Every child deserves a chance, whether able-bodied, disabled or neurodivergent,” says Moi. “That’s what Janet taught us.”

 

Building a dream

 

In 2022, Thong Kai (pictured with brother Jun Tat) opened Mecha, a mechanical keyboard store in Subang Jaya. Photo: Tan Thong Kai

In 2022, Thong Kai opened Mecha, a mechanical keyboard store in Subang Jaya. It was one of the first of its kind in Malaysia, offering fully customised keyboards.

“It was his dream business,” says Jun Tat. “He loved tech, design and wanted people to have keyboards tailored to their needs. Ah Kai understood struggle, so he always wanted to make things easier for others.”

Thong Kai’s store became a haven for keyboard enthusiasts – and a symbol of his resilience. His customers weren’t just buying a product; they were witnessing a story of overcoming obstacles, and the of joy found in craft and connection.

He was also a fan of Taiwanese singer and actor Jay Chou, never missing a concert in over 20 years. “Jay Chou even asked from the stage, ‘Is my fan Ah Kai here tonight?’ That’s how well he knew him,” says Li Lynn.

Furthermore, he adored Singaporean singer-songwriter JJ Lin, and even met him once.

“Despite living with disability, Ah Kai was active and independent. He wasn’t defined by his condition. He just wanted to live a normal, full life,” she adds.

 

Kindness is key

 

Janet was a colourist and expressed her feelings, thoughts and moods through vibrant hues and shades. Photo: The Star/Low Lay Phon

Despite his physical fragility, Thong Kai’s kindness was boundless.

He was known among friends as the “life of the party” – always cracking jokes, always ready to play games or hang out.

But behind that infectious laugh was a deeply generous spirit, reveals one of his friends, Jeremy Tan.

Once, a magician shared on social media that his gear had been stolen. Thong Kai had only met him once but immediately loaned him RM2,000. "Just want to help lah," he had said.

“Whenever anyone was feeling down because of difficulties, he’d say: ‘You’re healthy – you can find a way to solve this problem’,” Jeremy recalls.

 

Legacy that endures

 

Janet (right), pictured with her parents, has a legacy that lives on through her art (featured onfashion). The Star/Samuel OngOn Apr 21, Tan and his family had dinner together. “It was such a happy night,” says Li Lynn. “We didn’t know it would be our last.”

Their father flew to Australia that evening. The next morning, Tan developed breathing difficulties and couldn’t be revived.

The shock was immense.

“Most people with his condition don’t live past 20,” their father confided. “That he reached nearly 40 was already a miracle.”

Thong Kai’s siblings are still processing the loss. “He taught us that life isn’t about what you can’t do,” says Li Lynn. “It’s about how much you give, how much you love, and how bravely you live.”

When Janet passed away from ovarian cancer in 2023 at the age of 33, her family was devastated too, but they knew her journey wasn’t over.

Through her art and the House of Janet Lee, her story continues to guide other families in finding strength, even in hardship.

These two never let their disabilities define them. Instead, they defined themselves through action, expression, joy and love.

Their lives remind us that every individual – regardless of capability – has the potential to thrive, to give and to inspire. It starts with being believed in and loved.