Why a better support system is a must to help parents of kids with LLCs

Caring for a child with a life-limiting condition upends all sense of social normalcy, so social support is imperative for these parents to prevent caregiving burnout. — 123rf

LIFE-LIMITING conditions (LLC) are medical conditions with no reasonable hope for a cure, even with the current advancements in medical science. Certain syndromes that children are born with fall under this category, including cystic fibrosis and Duchenne muscular dystrophy.

Parents are usually ill-prepared to have a child with LLC. It is not part of the usual parenting playbook. And changing this script is very difficult, especially when faced with the possibility that their child’s life might be shortened.