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Friday September 20, 2013 MYT 12:00:00 AM
Friday September 20, 2013 MYT 8:25:22 AM
by ivan loh
Help needed: Vicneswaran strapping on the walking assistance apparatus on Rupanaa during a press conference held by Perak Barisan Nasional Public Services and Complaints Centre chief Mohd Rawi Abdullah (second from right). Looking on is Rupanaa’s twin sister Rupinii.
IPOH: A father is pleading for public donations so that he can treat his daughter who has been diagnosed with spastic diplegia since she was two years old.
Supervisor M. Vicneswaran, 45, said his 11-year-old daugther Rupanaa has difficulty walking due to the disease and needs to get Ayurvedic treatment in Kerala, India.
“I took her to Kerala to get the treatment in 2011.
“After the first treatment, she could move her leg slightly and her movement continued to improve after subsequent treatments last year,” he said at a press conference held by Perak Barisan Nasional Public Services and Complaints Centre chief Mohd Rawi Abdullah here on yesterday.
Spastic diplegia, also known as little’s disease, is a chronic neuromuscular condition of hypertonia and spasticity mostly affecting the muscles of the lower body, usually those of the legs, hips and pelvis.
Vicneswaran said his daughter needed two treatments a year, each lasting for a month.
He said he had used up most of his savings and had spent about RM100,000 to treat his daughter.
“The treatment expenditure in India costs about RM35,000 a year.
“My salary and my wife’s add up to about RM4,000 and we can no longer afford to send her to India for further treatment.
“I am assured that the treatment is working for her and I hope generous Malaysians can help ensure that my daughter will walk without needing assistance,” he said, adding that Rupanaa would require treatment for another five years.
Vicneswaran said his daughter had sought treatment from local hospitals but none had worked for her.
“A doctor from Selayang Hospital injected her with botox, which cost about RM1,500 per injection, but after two years of treatment from 2006 to 2008, Rupanaa’s condition did not improve,” he said.
Vicneswaran said that apart from her disability, Rupanaa was doing well in school.
Those who wish to help can bank in the money to Pertubuhan Masyarakat Perihatin Perak’s bank account at 0811-0005538051.
Those who are banking the money direct should notify Vicneswaran at 016-535-0565 and those banking through cheque should write Rupanaa’s name at the back of the cheque.
Mohd Rawi said he would also assist Vicneswaran by trying to apply for Welfare Department aid for Rupanaa.
“I will also try to get some donations from companies and individuals,” he said.
Tags / Keywords:
Family & Community, rupanaa, spastic diplegia, donation, treatment, kerala
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